Things are moving along here! Briggs got his first bottle and first baby food, we also got to hold him for the first time, which was painful for him and therefore brief. But it was heaven for me. The latest we're hearing is that they will take out his central line (the IV in his neck) today. Briggs already took out one of his arm IVs himself last night. That was not fun at the time, but ended up to be a good idea as he could suck his thumb and get a little rest. He still has some CO2 in his blood, so he's only high flow nasal oxygen. They are weaning him down today, but he can't leave the ICU until he's off that. He also still has an IV in his leg and his other arm, but one of those should come out soon. The trick are the chest tubes. One goes into his heart to drain any leftover fluid from surgery, but he has a second chest tube because he had some fluid in his lungs which has now been cleared but they will leave the tubes in for a while to be safe. He can't really move around much until those tubes are out because they are each connected to large boxes. But, we're eager to see if he can and wants to walk. That will speed healing too if possible. The next day are going to be tough - he is mad, wants to move, has no attention span - it's basically like taking a 4 day plane flight with a 13 month old who has to stay in his own seat wrapped in wires. At least, thanks to friends and family, Billy and I can occasionally get off the plane :)
Here's are a few pictures of our firsts:
Also, I wanted to say thank you to the people of Menlo Park Presbyterian Church for the prayers, the women who make the prayer shawls (shown below with my friend Andrea whose 4 year old son Drew will be leaving the hospital pretty soon), to Frank and Erica for their visits and p
rayers.

9 comments:
All so great to hear! So happy to see him in your arms. Warner picked a little something to send to Briggs that is underway. We eagerly await more news of progress and are praying for his comfort and healing. xx Dru
Thank you for sharing your journey, I have learned much from you and Andrea, as I await my own childs OHS. I'm glad the 2nd extubation went better than the first!
amber
TEARS OF JOY seeing this picture of you holding him, Christa. You keep hanging in. You are one amazing family, and your strength and love are helping little Briggs enormously.
The plane analogy makes it so clear in my head how hard it must be for him.
So glad to see him slurping that bottle and giving Mommy some TLC.
XOXO
Harrison said his own little prayer for Briggs today at church. We are so happy to get your positive updates. It is so sweet to see him in your arms. Praying for comfort, healing and entertainment. Kathryn
I'm in awe of the strength you all have ... Briggs included. I imagine that you and Billy are doing all of this without any sleep and very little food. Maybe a few Swedsih fish? Given all that, thank you for taking the time to keep all of us up to date on Briggs' progress. We are so relieved that he is improving. Hopefully in the near future you all will be free to move about the cabin. XOXO, Vickie
So great to see him in your arms and to hear that he is progressing well. We have been thinking about you non-stop. If you want to think positively.....any future plane trips will seem like no big deal.
we have been out of the country and just got back tonight. thank goodness i read this blog first, because i know briggs is ok. the earlier blogs sound terrifying. i thought of you all on surgery day and sent a prayer. i was not able to check email until now. thanks so much for the updates. the blog is a wonderful idea. how wonderul to be able to hold him today!!!
xo, Laurie
How wonderful to see your baby in your arms. No wonder Briggs is so strong, just look at his mamma and daddy. You guys have been through so much but hopefully the worst is over. I am praying for Briggs. He is going to get better and stronger and stronger. xoxo Susie
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